It’s amazing how the human being is given so many abilities and strengths, but would absolutely have no idea what is going to happen in the next second of his/her life.
Being a mother of a gorgeous special needs boy can be particularly so frustrating not to know if the next move is the right one or not. Being challenged with many difficult decisions which some of them can actually be fatal to the life of a medically fragile kid was not my idea of having kids and enjoying them.
But I adore my son Nemer, and to a point that I appreciate facing those challenges. Call me crazy, but I feel i’m gifted to do so!
The decision to put Nemer on the ketogenic diet to treat his uncontrolled seizures wasn’t easy at all. It certainly wasn’t anything like: “should I give my son this, or that allergy medication?”
Today is Dec 6th, 2011 which brings back memories of the period from Dec 6th,2010 until Jan 18th,2011. Those seven weeks were for me the most overwhelming, most terrifying, most emotional, and most powerful times I have ever lived with Nemer.
Drugged with five anticonvulsants, and facing the high possibility of getting Hemispherectomy;a type of epilepsy surgery usually performed to control uncontrollable epilepsy; my son’s scared eyes were crying out to me. I’m sure specialists were doing their job, their big meetings, and research to help him, but it was time for a parent’s instinct to work.
It’s been a year now, and since that experience when it comes to my family I rely on the most primitive resource I have; a mother’s instinct. That being said I still do my research and my readings , and boy I can get obsessed 🙂 After all I’m a protector.
I’m so grateful that you’re healthy and those ugly seizures are under control with the ketogenic diet. In fact you are seizure free. It has proved its effectiveness with four seizure medications being checked off the list and only one more to go. That is a big accomplishment, thank you God.
Your mama is blessed to have your baba’s strong support. Him and me are one when it comes to your safety.
I also want to remind you sweetie that through that difficult period friends and family’s support was critical. I’m so thankful to all those who made it easier on your father and me, and held our hands with their warm hearts. Thank you my family, in particular my sister Dina who eased my fear and worries. Thank you my relatives for being there for us. And thank you my friends for your advice and support.