I guess all you needed was your own bed and room to calm you down. And probably also the fact that you don’t have an NG tube any more.
On Tuesday, June 7th,2011 you got your G tube insertion.
The operation went fine and you tolerated feeds after 12 hours very well so you were able to go home tonight.
However, what made things challenging was the dissapointing fact that the “Ketogenic Diet” still isn’t well recognised at a big hospital as the SickKids Hospital.
Your father and me had to question every act the specialists wanted to do because simply none of them showed their full understanding of how critical your ketogenic diet is for controling seizures.
It felt like we were dictators who wanted to suppress any saying or act!!
But all we were doing was preventing you from the harm of giving you ignorantly any carbohydrates.
We got things under control and nothing was given to you without first checking with me or your father.
I have to say you seem so delighted that the NG tube is finally out 🙂
Tomorrow is going to be our first day alone with the G tube. I hope things will stay fine and no complications.
Sweet dreams love.
I’m writing to you while you’re sleeping on my shoulder in the emergency department at SickKids hospital, room 22.
You’ve been admitted to the hospital because you’re dehydrated due to not drinking enough fluids. And since you’re on the ketogenic diet and one of your meds have the side effect of kidney stones, enough fluids intake is critical for you.
So far they are helping you out by giving you fluids through the IV. They’ve tested you for kidney stones, you’re fine 🙂
A new plan will be discussed tomorrow morning.
Hope you and I will have a good sleep tonight.